Website links to each ALS/MND organization is included below which you can visit to learn more about what they’re doing as well as to make your donation once you’ve completed your Bake to Defeat ALS challenge! If you would like to submit another ALS organization for consideration that’s not already included below, please fill out the online contact form. Along with your name and email, include the name of the organization and their website address in the comment section of the form.
If you’re joining us from outside the United States and aren’t familiar with an ALS agency in your country visit the ALS/MND Alliance International Directory to find a global listing of ALS/MND organizations representing over 30 countries.
Organizations with a Multiple Focus including two or more of the following: Research, Advocacy and Awareness, PAL and Caregiver Support
The ALS Association, National Office
Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig’s Disease and their families to live fuller lives by providing them with compassionate care and support. Donate here to support the National Office in Washington, D.C..
The ALS Association, Local Chapters
Supporting those in your state or city (United States). Use the search engine at this link to find the website to your local chapter where you can make your donation.
Dedicated to supporting Canadians living with ALS , and investing in research for the future, so ALS will be a treatable, not terminal disease.
The Emory ALS Center, Atlanta
The Emory ALS Center is one of the largest clinical centers for ALS in the United States. The Center provides true multidisciplinary care for patients and families with ALS andrelated disorders. The focus of our patient model is on independence and quality of life through state-of-the-art intervention. Emory ALS Center physician-scientists continue to perform groundbreaking research, including developing surgical methods for delivery of therapeutics to the spinal cord. Our researchers search tirelessly for a cure for this devastating disease, focusing on basic mechanisms of motor neuron degeneration, genetics of ALS, and new experimental treatments.
ALS Organizations with a Primary Focus on Research and Treatments
ALS Therapy Development Institute (ALS TDI)
ALS TDI is dedicated to funding research to cure ALS. Our affiliates do this by working together, connecting together, telling their stories and driving charitable support directly to ALS research at the ALS Therapy Development Institute.
ALS ETF (Emergency Treatment Fund)
Empowering patients and clinics to explore new medicine. ALS ETF believe in serving the patients of today who don’t have the many years it takes to bring pipeline ALS drugs through clinical trial and to market. Large scale Expanded Access Programs (EAPs) -allow physicians t explore more treatment options with their patients and can restore a legitimate sense of hope and control to the world of ALS.
ALS Hope Foundation
Provides funding for the MDA/ALS Center of Hope, the first multidisciplinary ALS clinic in the U.S., and the Neuromuscular research laboratory at Drexel University Collect of Medicine. The Foundation also provides educational events to inform people living with ALS and the public about ALS Research, as well as funding local and international efforts to find the cause and cure of ALS.
ALS Therapy Alliance
Facilitates ALS research projects and collaborations among a diverse group of scientists and clinicians at multiple institutions to cure ALS.
ALS Worldwide advances the most promising research and brings guidance, compassion and hope to thousands of ALS patients and their loved ones in more than 90 countries. Our organization provides free personalized support to people living with ALS via videoconference, email, phone, in-person visits and online resources. We help people understand and cope with an ALS diagnosis, explain treatment options to better manage symptoms, and provide emotional support and guidance on a wide variety of topics to improve quality of life.
Our mission is to find solutions for people living with ALS now and for the future.
International Alliance of ALS/MND Associations
The International Alliance of ALS/MND Associations was founded in 1992 to provide an international community for individual ALS/MND associations from around the world. Our vision is to engage with our members, prospective members and other organisations to share resources globally, advance awareness and support people with ALS/MND worldwide.
Iron Horse Foundation
We are a foundation dedicated to finding a cure for ALS. Every dollar goes to research.
Kevin Turner Foundation
The Kevin Turner Foundation was created to bring attention to ALS and sports-related traumatic brain injuries. KTF is working to raise awareness to the seriousness of brain trauma in athletes, at every level of competition, and it’s possible connection to ALS. We financially support efforts to study, treat, prevent, and ultimately cure ALS.
Muscular Dystrophy Association (MDA)
Since 1950, MDA has invested more than $354 million in ALS research and support services. MDA takes a big picture perspective across neuromuscular disease to uncover breakthroughs that will accelerate treatments and cures. MDA provides highly specialized care and access to promising clinical trials at MDACare Centers across the United States and Puerto Rico. MDA empowers ALS families with services and support in hometowns across America.
Motor Neurone Disease Association (MNDA)
The MND Association, which covers England, Wales and Northern Ireland, works to improve care and support, fund research to find a cure and campaign to raise awareness of the needs of people with MND. The MND Association does the same type work as the ALS Association in the United States. The only real difference is what we care the disease.
Prize4Life was founded in 2006 with a singular mission: to accelerate the discovery of treatments and a cure for ALS, a terminal disease whose cause has eluded scientists for over a century. Since then, we have successfully launched and awarded several prizes and programs that have taken us closer to fulfilling that mission.
Project ALS identifies and funds the most promising scientific research that will lead to the first effective treatments and a cure for ALS. By recruiting the world’s best scientists and doctors to work together—rationally and aggressively—we can develop a better understanding of the ALS disease process and, in parallel, better therapeutic strategies.
Target ALS is a privately funded consortium of researchers from academic and biotech/pharma laboratories entirely focused on finding a treatment for patients living with ALS. We fund research consortia, Springboard Fellowships for emerging research leaders, and nationwide core facilities.
The Pinstripe Fund
Contributions to the PinStripes Fund benefit the Carolinas Neuromuscular/ALS-MD Center at Carolinas Medical Center. Donations underwrite initiatives of the ALS Center that directly affect the comprehensive care of its patients and further advance treatment programs. By supporting the PinStripes Fund, donors play a key role in sustaining the research advances critical to improving and expanding treatment options and provide direct assistance to ALS patients and their families.
The Robert Packard Center for ALS Research at Johns Hopkins
The Robert Packard Center for ALS Research has been on forefront of ALS research for the past fifteen years. Our approach to research is one where we facilitate intense scientific collaboration across institutional and administrative boundaries. Our aim is to provide innovative, promising, focused projects with researchers who understand that collaboration is a powerful catalyst in ending the disease.
ALS Organizations with a Primary Focus on Providing assistance for those living today with als
ALS Guardian Angels
Most ALS related organizations are dedicated to finding a cure. Until then, ALS patients need help living. The ALS Guardian Angels Foundation is dedicated to helping patients and their families live with ALS while maintaining the best quality of life possible.
Les Turner ALS Foundation
For nearly forty years, the Les Turner ALS FOundation has been Chicagoland’s leader in research, patient services and education about ALS, serving nearly 90% of people with ALS in the area, offering hope and help when it’s needed most.
Help provide individuals with neuromuscular diseases or injuries with leading edge technology, equipment and services. To create a global conversation about ALS to ultimately find salutations and an end to the disease. To raise public awareness about ALS by providing and documenting extraordinary life adventures for individuals with muscular diseases or injuries.
Hearts For ALS
Hearts for ALS is an all volunteer organization that is dedicated to help provide for the needs of people living with ALS.
HARK provides assistance to alleviate the financial burdens faced by families battling ALS. We offer support in many ways including:
Purchase and donate handicap accessible vans to PALS.
Purchase equipment not covered by insurance
Pay travel expenses for PALS to visit family or attend an important family event they would not otherwise be able to afford…
ALS Organizations with A UNIQUE FOCUS
Hope Loves Company
HLC is the only non-profit in the U.S. dedicated to the children of ALS patients. It is estimated that 85% of ALS patients have children, so those children will witness a parent struggling with terminal illness. HLC is unique in its dedication to supporting the children of ALS patients and relatives. The mission of Hope Loves Company is to provide emotional and educational support to children and young adults who have family members battling ALS.